This next phase of recovery is going to be about discovering limits.
Limits of my physical endurance, what i can eat without provoking a nasty reaction, how much sleep my body requires per day and how much pain relief is still necessary.
As with the hospital stay, i realise that i'm having "up" days followed by "down" days.
Today is not a particularly comfortable day, following a rather explosive episode last night. Claudia has suggested i start a food diary as a way of keeping track of what agrees with me and what doesn't. This is really going back to basics! I've never had an intolerance or allergy to anything and to forego something i've otherwise loved eating would be quite frustrating.
But family and friends are doing their very best to keep my spirits up.
Its amazing to see Claudia and the boys every day! Max always wants to see and touch my feeding tube (which is stitched onto me on the outside, with a tube passing through into my small intestine). The whole thing must be so weird for him. Claudia has done so well in trying to explain what has happened to me... it goes something like this:
"Daddy was sick, so the doctors did some mending on him in hospital. They made his 'food slide' better"!
Inspired.
Thursday, 13 August 2009
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Good to hear you made it home. Sent a card for you and Claudia to your M&D's home -only address I had with me...
ReplyDeletebe back in Bristol 2 weeks today!
all our love
Mark and Rachel